The Jérôme Lejeune Foundation, a main actor of research for Down Syndrome
In France, the state does not have a public research policy for Down Syndrome. This is why the Jérôme Lejeune Foundation’s priority is therapeutic research for the benefit of people with Down Syndrome.
How is this commitment to research expressed?
Firstly, the Foundation funds programmes selected by its scientific council. Every year, between 30 and 50 research projects are thus funded.
Furthermore, the research department of the Foundation elaborates, coordinates and follows up research programmes which are implemented by French and international teams, particularly in Spain, Italy, Belgium, Great-Britain, the US, and Australia.
Finally, the Foundation has entrusted the management of the specialised biological resource centre to its medical consultation, the Jérôme Lejeune Institute. The Jérôme Lejeune Institute is also engaged in therapeutic research, particularly through the launch and development of its own programmes, its participation in projects carried-out in cooperation, and the participation of patients in clinical trials.
The Jérôme Lejeune Foundation, which is a non-lucrative organisation recognized to be of public interest, funds the development of this therapeutic research for Down Syndrome and other genetic intellectual disabilities exclusively thanks to private donations.