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Ségolène, Robin and Inès, the three French actors of the video #DearFutureMom, answer out questions

Published on 03/27/2014 in Testimonials

Ségolène, Robin and Inès took part in the shooting of the video Dear Future Mom. The World Day for Down Syndrome was a wonderful opportunity to ask them, and their mothers, a few questions.

ségolène

 

Hello Ségolène, you played a part in the video for the campaign Dear Future Mom». According to you, what is a mother?

For me, a mother is the most beautiful person in the world, she is the person who gave me life. It is someone who looks after her child a lot. A mother is “a lot of kisses and hugs” and someone who protects her child.

What would you like to say to Future mothers who are expecting a child with Down Syndrome?

More than anything else, not to be afraid, that they must love their child, that they must not treat it differently from a normal child.

What would you like to say to those who will read your interview on the 21st of March?

That, indeed, people with Down Syndrome are capable of communicating and thinking.

According to you, what is Down Syndrome?

It is the Jérôme Lejeune Foundation that deals with Down Syndrome. Down Syndrome is a disability but not an illness.

You are Ségolène’s mother, you actively participated in the campaign. What would you say to Future mothers who are expecting a child with Down Syndrome?

Well, of course, as you are giving birth, you feel a bit distressed. Me, as a mother, will I be up to it, and why does my child have to go through this? And then, as the years go past, you experience joy, success and the fact that your child can live the same as anyone else even though she is a bit slow. She was far easier to bring up than her brothers and sisters because it all happens inside the heart, through love. And you just become amazed at what you manage to achieve.

Ségolène is your child, what does she mean to you?

Ségolène is my sunshine. She is my model of courage. When we are feeling down, she is the one who helps us get back off the ground. She is our good humour, our positivity, our liveliness. She always reminds us of what life is about and enabled us to experience real happiness.

Robin

According to you, Robin, what is a mother?

Why are you asking? For me, a mother is the person who gives life to a child and loves it. It is someone like my mother, I want to stay by her side. I know I am in love and am going to leave her but I am not ready yet.

What would you like to say to Future mothers who are expecting a child with Down Syndrome?

I would like to say that researchers will find a treatment to cure me and all the other children with Down Syndrome soon, that they should not be afraid.

It is the World Down Syndrome Day on the 21st of March, what message would you like to give to those who will read this interview?

I would like people to stop making fun of people who have Down Syndrome and start seeing us as ordinary people.

For you, what is Down Syndrome?

Down Syndrome is an illness that cannot be cured for the moment but researchers need to find a solution!

Robin’s mother did not partake directly in the shooting, nevertheless we asked her what message she wanted to give out for the World Down Syndrome Day:

I would like to say to Future mothers that carrying a child with Down Syndrome is, first of all, carrying a child ; that it is not easy to find a place among ordinary people when one has a different child but that it is a source of true happiness and that it enriches you every day in an incomparable way.

Thanks to Robin we were able to have extraordinary encounters, pilot major projects, to see life differently and appreciate little moments of everyday life.

Being two helps to better apprehend things and the presence of Robin’s father is an unwavering support and he has exigencies with his sons I don’t always have which helps Robin to evolve.

He is now 23 years old, he lives in his flat, is receiving professional training and will soon be working in an ordinary place. He has a girlfriend and has chosen to learn French sign language. In short, he is a young man like any other, or nearly.

Robin is the third of 4 children, I am extremely proud of him and of his brothers and his sister. There were many obstacles on his way but with him, we overcame them and came out stronger.

We can’t wait for a solution to be found thanks to research that will to minimize mental disability and make life easier for our son and all people with Down Syndrome.

ines ptit

Hello Inès, you took part in the shooting of the video in Milan in which you speak to futures mothers who will have a child with Down Syndrome. For you, what is a mother?

A mother is like a pretty flower, a heart and is the prettiest! It is very important that mothers live and never die.

What would you like to say to future mothers who are expecting a child with Down Syndrome?

The first time you have a bay with Down Syndrome, it is weird.

It is the World Down Syndrome Day on the 21st of March, what message would you like to give to those who will read this interview?

A future mother, is afraid that her child will not be able to learn things. But he can learn to write, t count…. Are you afraid Mum? (answer : NO)

Having Down Syndrome is not that annoying, what is though, is when people stare at me or when they say I have Down Syndrome.

According to you, what is Down Syndrome?

One can be happy with Down Syndrome, happy with his family and with his friends at school. To have Down Syndrome is not the same as being disabled. Being disabled, is being deaf or blind or in a wheel chair.

Hello, you are Inès’ mum, you took part in the shooting of the video for the World Down Syndrome Day. What message do you want to give to future moms?

That this child will know how to earn the affection of the people around him well beyond anything her mother could ever have imagined. That he will be able to have as good a life as anyone else. There is something very particular with people who have Dow Syndrome, a quality which makes them present to life, to others.

Inès is your daughter, what does she mean to you?

Inès is one of my children and she has all my love, as they all do; but it is true that she occupies a unique place because a lot of things must be set up for her to be accompanied, for sport, her hobbies, her health, etc. But also because there is something that flows out from her that amazes me. She also has spirituals inspirations which overwhelms me with admiration

 

 


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