Briac’s other world

 

As Briac’s mother puts it so well, Briac has been taking his family into a different world for 9 years. It is world where life is lived “one day at a time”, regulated by the great joys of daily life and the sometimes great difficulties met along the way.

Briac1As Briac’s mother puts it so well, Briac has been taking his family into a different world for 9 years. It is world where life is lived “one day at a time”, regulated by the great joys of daily life and the sometimes great difficulties met along the way. The world of a life lived with a little boy who has Smith-Magenis Syndrome.

A few weeks ago, Briac entered into CE2 (2nd grade), in the same school as his 12 year old big brother and 5 year old little sister. His parents insisted he should stay in the classic schooling system as long as possible.

However, the consequences of Smith-Magenis
Syndrome don’t make Briac’s life at school simple: he suffers from attention disorders, sleep attacks in the middle of the day, and intolerance to noise and changes. He benefits from a school aid 22 hours a week to help him progress and, indeed, it seems to be working.

Briac2After having spent 5 years in his school, Briac’s communication and social skills have considerably improved. All this, especially thanks to the precious support he received from
his classmates. They welcomed him open heartedly, accepting he was different and looking after him on a daily basis, to such a point that some of them asked to be in his class again the following year. His parents are greatly

relieved to see their boy so well surrounded but, more than anything else, it is a wonderful message of hope for them: by welcoming Briac, these
children have given him a place as a person in spite of his disability. As says his mother: “They will turn into adults who won’t be afraid of disability and will know how to open up to these people.”.

In the meantime, Briac is living his life as a little boy in the simplest of ways, adapting and taking on his difficulties. Thus,

Briac3his parents have bought him an iPad to help him write despite his poor muscular tone. As the
great technology amateur he is, he has learnt to master the iPad perfectly, leaving his parents nonplussed when faced with the initiatives he sometimes takes! He skies, rides a bicycle, rides horses and has been learning to swim and do judo. All these activities sometimes makes the organization difficult.
In short, he is a happy little bunny growing up as peacefully as possible surrounded by his very considerate big brother and his little sister who always makes a point of warning any new person that Briac is a bit different. The everyday life can sometimes turn out to be a bit difficult, or even discouraging, but his parents hang on to what has been, for them, the greatest of luck: the fact of only getting briac’s diagnosis when he was 3 because, even though it was a long and distressing time to wait, they learnt how to love Briac for himself, his qualities, his personality, way beyond his syndrome.

And, in the end, Briac has taken them into a new world, his world : the one where there are great joys despite all the difficulties, small every day victories which seemed unachievable, a world in which they have his great humour and the chance of having him.

 

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