Balance sheet from July 1st, 2013 to June 30th, 2014

In 2013-2014, donators answered the calls of the Jérôme Lejeune Foundation for everything that was at stake, and enabled the funding of the various statutory missions (research, care, and the defence of disabled people) to be increased. Thus, the expenditure for the defence of disabled people was globally increased by about 12%. As they receive no public funding, the missions of the Jérôme Lejeune Foundation are mainly funded by the public’s generosity (95% of resources). These resources add up to 9.9 million euros on the balance sheet (+3%). The other products of the Foundation must cover the expenses related to the Foundation’s good functioning and the research of new funds.

Research: There has been a major increase in the number of therapeutic and clinical research projects (+35%), which reached 4 million euros. A dual objectivetook precedence over the scientific investments: reinforce the development of therapeutic projects related to patients (+25%) and accompany the Jérôme Lejeune Institute’s clinical research (a quarter of the Foundation’s research budget, against 12% in 2012-2013).

Care: The Foundation has also increased its support to the Jérôme Lejeune Institute (+23%), partly for the organisation of the international congress “the International Clinical Jérôme Lejeune Days”, in September 2014, around the themes: “assessment in intellectual disability” and, more fundamentally, to strengthen its accompaniment and medical follow-up system.

Defending disabled people and defending life : 2013-2014 was marked by a sustained level of activity, illustrated by the success of the video “Dear Future Mom” and launched for the international Down Syndrome Day by the publication of the manual on euthanasia and by the success of the petition “One of us”. However, the budget decreased (-41%), after having ordered an exceptional 2 million copies of the young persons’ bioethics manual. Thus, for 100€ received through people’s generosity and used, 78 € were employed for statutory missions, the latter having faced a 1% decrease.

For every 100€ euros received and used, 78€ were employed for statutory missions

Research: 38.5€ (national and international subsidies, clinical and therapeutic research, international partnerships, organisations of international congresses).

Care: 18.30€ (medico-social and medical consultations, training of specialised personnel, organisation of clinical congresses).

Defence: 9.00€ (Genetics, bioethical information, help to parents and teachers and actions of promotion)

Other missions: 12.2€ (Letter of the Foundation, USA Foundation, informative websites, management of the medical centre premises, of the laboratory and of the offices).

15.3€ were spent on collection costs and 6.7€ on management costs.

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The words of Alexis Dyèvren trasurer of the Jérôme Lejeune Foundation

The Jérôme Lejeune Foundation has got to the end of this accounting period at a break-even point thanks to the exemplary generosity of its donators and despite a 30% increase of research and care expenditures. It thus presents a healthy and strong balance sheet structure. This financial base will enable the Foundation to maintain its essential research work in the year to come, within a particularly degraded economical and societal environment. For this, we thank you all very much.

The word of Jean-Marie Le Méné, president of the Jérôme Lejeune Foundation

In our feverish world, the Foundation shines out like a safe haven, lighting up the way. The trust it has earned has remained intact despite the worldly attacks it has had to face. Its donators are unwaveringly faithful. I would particularly like to thank the Board of Directors for its attachment to Jérôme Lejeune’s vision and for its determination to carry on his work through the various actions carried out by the Foundation. The 2013-2014 activity report is rich with results and promises.

 

 

 

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Questions of donators

The resources collected from people and not used increased at the end of 2012-2013 and decreased by the same amount in 2013-2014. Is this normal?

In 2012-2013, the unexpected progression of legacies and of the operating income to a good level enabled us to release reserves. In 2013-2014, the size of the various projects led us to a negative result and to using 473K€ of the reserves we had constituted the previews year. The 2,677K€ visible on the 2012-2013 balance sheet changed to 2,619K€ for the beginning of the next balance sheet because the administration board had assigned 10% of the resource surplus we had, to statutory reserve, to ensure the Foundation’s sustainability.

What else is included in the operating income?

The activities that enable the funding of operating and collection expenses, and therefore allow the donations to be used only for statutory missions.

Among these activities, the Foundation tries to organise lucrative events, book sales, and the renting of commercial property every 2 or 3 years. In 2013-2014, the departure of one of our tenants explains the momentary decrease of revenue.

The statutory expenses related to “care” has strongly increased and those related to “defence” has decreased. Can you explain this?

The Foundation supports the Jérôme Lejeune Institute, which is a specialised medical centre.

In 2013-2014, the Institute incurred important expenditures for the organisation of “the International Clinical Jérôme Lejeune Days”, a scientific congress that took place in September 2014. The increase in “care” expenditures covers these costs. However, as far as “defence” is concerned, the Foundation made a great effort in 2012-2013 to answer the various requests it received concerning bioethics in Europe. 2013-2014 was marked by the return of the Foundation to the level of commitment it had shown during the previews years.

Aren’t the collection and functioning expenses too high?

According to the criteria defined by the general accounting office, the Foundation should spend less than 25% of its annual expenditure on its collection and functioning expenses. This is largely the case.

Not benefitting from any help from the state, the Foundation has to spend a lot on preserving its existence in the long run.

The increase in collective costs in 2013-2014 is entirely due to a reassignment of the expenses related to the staff, proportional to each employees’ activities. Before now, this attribution depended on the main mission of each employee.